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Helpful Resources

These organizations offer assistance with the issues faced by many elders, their caregivers and their families:

AARP

AARP (formerly known as the American Association of Retired Persons) is a nonprofit membership organization dedicated to addressing the needs and interests of persons 50 years and older.  Through information and education, advocacy and service, they seek to enhance the quality of life for all by promoting independence, dignity, and purpose.

Administration on Aging Information on Older Persons and Services for the Elderly

Administration on Aging (AoA) “Elder Page” site contains many resources for the elderly that can be useful for attorneys as well.  There is a large nationwide searchable directory of 230 national and local agencies, health associations, and organizations.  There is a large compilation of general and statistical materials on-line.

Alzheimer’s Association

The Alzheimer’s Association is the largest national voluntary health organization dedicated to funding research into the causes, treatments, prevention, and cure of Alzheimer’s disease and to providing support to the four million Americans with the disease, their families, and caregivers.

American Cancer Society

The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.  Their website contains valuable resources including prevention and risk factors, treatment methods, detection guidelines, and patient services that help cancer patients and their families.

American Society on Aging

The American Society on Aging’s (ASA) members comprise of the largest multidisciplinary national community of professionals working with and on behalf of older people.  The membership includes representatives of the public and private sectors, service providers, researchers, educators, advocates, health, allied health, social service, managed care and long-term care and mental health professionals, students and the retired, policy makers and planners.  For over 40 years, the American Society on Aging has been an active and effective resource for professional in aging and aging-related fields who want to enhance their ability to promote the well-being of aging people and their families.

American Stroke Association

Arthritis Foundation

Healthcare.gov

Healthcare.gov is a federal government website managed by the U.S. Centers for Medicare and Medicaid Services (CMS) and is the official website for the Health Insurance Marketplace. Visit Healthcare.gov to learn more about the new health care law, benefits, and how to choose the right health insurance plan.

Honoring Choices

Honoring Choices Massachusetts is a highly collaborative initiative of dedicated individuals, groups and organizations who generously contribute their expertise and support to strengthen our shared mission. We recognize the leadership and expertise of our Collaborating Members, listed below. We share a simple yet powerful acknowledgment that “we stand behind your mission and you stand behind ours”, and that together we can improve access to information and high quality person-centered care for all Massachusetts residents.

LewyBody Dementia

Medicare

The federal government’s Medicare website includes specifics about Medicare, nursing home information and comparisons, and links to evaluate Medicare D prescription insurance options.

1.800.633.4227; TTY/TDD 1.877.486.2048.

Medicare Rights Center

Medicare Rights Center (MRC) is the largest independent source of health care information and assistance in the United States for people with Medicare.  Founded in 1989, MRC helps older adults and people with disabilities get good, affordable health care.  MRC’s website contains information about Medicare benefits, options and changes, examples of interesting cases we have dealt with, and resources for getting involved in our consumer advocacy work.  The site also contains updated information for consumers about the upcoming changes in Medicare and how those will affect their health coverage.

Mesothelioma + Asbestos Awareness Center

Informative online resource which assists mesothelioma patients and caretakers in learning more about mesothelioma cancer. Providing the best assistance, the Mesothelioma + Asbestos Awareness Center is a great source to locate doctors and cancer clinics that specifically treat this cancer. You can find all types of information regarding the different types, stages, diagnosis, prognosis, treatment options, and patient support. For additional information, please take a look at our guide and see if you'd like to receive a free packet with educational information that will assist you on your journey. 

National Academy of Elder Law Attorneys

The National Academy of Elder Law Attorneys, Inc., is a nonprofit association which assists lawyers, bar organizations, and others who work with older clients and their families.  Established in 1987, the Academy provides a resource of information, education, networking, and assistance to those who must deal with the many specialized issues involved with legal services to the elderly and disabled.

National Citizens’ Coalition for Nursing Home Reform

The mission of the National Citizens’ Coalition for Nursing Home Reform is to improve the quality of life of residents in the nation’s nursing homes.

National Family Caregivers Association

The National Family Caregivers Association offers services in the areas of information and education, support and validation, and public awareness and advocacy, toward the goal of minimizing the disparity between a caregiver’s quality of life and that of mainstream Americans.

National Guardianship Association

The mission of the National Guardianship Association is to provide educational, training, and networking opportunities for guardians; to promote the highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.

National Institute of Health

This website shares – in a fast and cost-effective way – consumer health information about many of the diseases or health problems on which NIH conducts or supports research.  You can choose from this growing full-text collection of our most requested consumer health publications.

National Parkinson Foundation

National Senior Citizens Law Center

The National Senior Citizens Law Center (NSCLC) advocates nationwide on behalf of low-income elderly individuals and persons with disabilities.  It provides litigation assistance, research and consulting support, national policy representation, training and manuals, and periodicals.  Substantive areas covered on the site include: age discrimination, Americans with Disabilities Act, Medicaid, Medicare, nursing homes, Older Americans Act, pension rights, and social security.  The site includes articles and legal documents on many of these topics.  The Center’s publications, including numerous manuals and a newsletter, are described, but are for sale in print form only.

Social Security Administrations

The official website of the U.S. Social Security Administration.

Stand Up for Health Care

Stand Up for Health Care is a project of Families USA, a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. Working at the national, state, and community levels, they have earned a national reputation as an effective voice for health care consumers for 25 years.

Veterans Administration’s Guide to Long Term Care

This website offers information for Veterans and caregivers/support persons about long-term care services and settings, links to helpful websites, decision aids, and personal stories that illustrate how to be involved in shared decisions about long term care. The Shared Decision Making aid is a useful tool in helping veterans, their families, and their support persons to decide how much assistance they need. Readers may also download a Caregiver Assessment form.

Calendar
Thu Mar 02nd 8:00AM to 10:00AM
Early Cognitive Impairment: Elderly Driving and High Risk Behaviors at the Edge of Incapacity.
Wed Mar 15th 4:00PM to 6:00PM
This presentation is designed to help professionals who work with older adult to identify the signs, symptoms, and risk factors of elder abuse; to understand the barriers to reporting and detecting elder abuse; and to know what types of legal and non-legal help is available and how to access help when you suspect elder abuse. In addition, there will be a discussion about the role of mandated reporters.
Wed Apr 19th
Details to follow.
Wed May 17th 4:00PM to 6:00PM
Presenter: Ginette Lafleche, Ph.D.
Wed Jun 21st
details to follow
SUSAN R.SHAPIRO, MEMORIAL FUND

Click Here for more information.

Member Association Blog
Articles
12/09/2015
Article from Kiplinger offering advice on the caring of a caregiver.
12/09/2015
Boston Globe article link.
12/08/2015
An article from the New York Times about how Caregivers sometimes must sacrifice thier careers.
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